My Mother’s Story: We’re People, not Products

Mother’s Day is a time to show appreciation for the special women in our lives who kissed away our boo-boos, dried our tears, and forced us to eat our vegetables. However, for those of us whose mothers are no longer with us, this holiday can…

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Humor is powerful in healthcare, but stories will change the industry.

A few weeks back, I put a few questions out to the Twittersphere to see what kind of responses I might get for HealthSparq and the #WhatTheHealthCare/#WTFix campaign. We wanted to see what caregivers, nurses, physicians, hospital admins (my people!) had to say. Its no…

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The FDA’s Mirror Moment: Will a New Office Reflect Patients’ Needs?

The Food and Drug Administration (FDA) has proposed creating a new office for Patient Affairs to serve as a central hub for the agency’s engagement with patient communities. What does that mean? In a nutshell, the agency is trying to make it easier for both…

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What to Expect at What’s the Fix? Part II: Afternoon Agenda

What’s the Fix? is a conference specifically created to bring stories to light and to use those stories to help change the mess that is health care. We aren’t trying to fix health care at the macro level (an extremely difficult task, and, as someone…

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#WhatTheHealthCare Patient

Personalized care in a specialized world

When something like a small skin irritation comes up in my life, there are well-worn neuron pathways that are retraced. The worry, uncertainty, fear, dread—even anger—are all right there. I begin to think that the worst diagnosis is the most likely one for me. I wonder if my life will repeatedly be interrupted by the bad news that my body has once again betrayed me.

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